Thursday, October 15, 2009
Monday, July 14, 2008
A Tag..
From the lovely Rozzie
1. Ten years ago..........I was still at school (OMG) still finshing off year 12 and working at Maccas
2. 5 things on my to do list* Scrap a few LOs*Clean Up Backyard*Go pay for the windows for our house*Work out what colour to paint outside ??*Organise Dinner?? still not sure about that, might be Pizza;)
3.Snacks I enjoy......coffee (sounds good Rozzie), Chocolate, Cookies, rice cakes
4. If I were a millionare....i would employ the most experienced person/s avaliable to make my little man well again, the rest id give away..
5. Places I have lived.....Do we have all week??... Greystanes (in Sydney), Gorokan, Kanwal, Toukley, The Entrance, Morriset, Yarrawonga Park, Bonnels Bay, Tamworth, Attunga, Toukley again, Crabbes Creek, Mardi, Tuggerah, Norah Head, Noraville, Long Jetty, Pottsville Beach, Cabarita Beach, Tweed Heads, Cabarita Beach and we're moving to Pottsville Beach again at the end of the year..
now ill tag Mardi, just cause shes beautiful :)
Til next time..
Posted by Megan W at Monday, July 14, 2008 6 comments
Thursday, June 19, 2008
Phew time to breath again...
Pics and Los to share in the next post, warning very long blah blah blah post, so if you want a coffee id get it first lol
Well for the past few months weve been very busy, doing there whole Drs thing to try and discover what is wrong with our little man, its been tests tests and more tests, without positive or reassuring results.
Weve been given the run around by several Drs, and now 10 weeks later are no closer to an answer than before, which really sucks.
First we went to see the Paedatrician after many months of me telling the Drs its not right my son cant talk, they all told me hed get better, how old is he theyd say, almost three my reply, ah hes fine no probs many children dont talk til they are three or older, or my favourite his brother talks for him ?? what the Jacks got less idea what he wants then us are they for real??
So we get to the Paedarician, after weeks of fighting with their secretary about needing to see someone ASAP we finally get an appointment with the Paedatrician, who sends us for numerous tests, bloods, urine, etc, and tells me to go for this EEG scan, (brain scan) just to cross it off his list. A couple of days go by and i finally book him in for EEG scan only to have to wait for two weeks to get it done. Scan completed we fast forward to next day at Gps surgery where Heidi is getting her shots, Gp tells me all bloods have come back fine, not sure what to do now, youll have to wait to see Pasedatrician again. That night we are eating dinner and get a phone call from the Paedatricians office, we need you to bring blake in tomorrow, to start treatment, ive been discussing the results with the head of Neurology (wait hold up the head of neurology, WTF??) and weve decided that Blake needs to start treatment for this rare type of Epilepsy (Landau Kleffner Syndrome) that is making his Brain fit, he will need to be hospitalized for at least three days, well see how he goes.. see you Friday morning at 6 (huh?? all still very overwhelmed i got off the phone and tried to explain to Paul)
So for the next eleven hours i researched the internet for answers to the mystery illness that was apparently the cause for my sons problem, the first few minutes were mind numbing, im not sure but when you are affected greatly by something your body just goes into shock, i couldnt fathom what i was reading , my son, our little boy is never going to talk, he will eventually loose all understanding of our language, these children are affected for the rest of their lives although in most cases the Epileptic seizures cease at about 15, and the scariest part, there have only been about 250 reported cases since 1957 when it was discovered, how are you going to fix him when you dont know how??
So we get to the hospital and the Drs really has no answers other than well see how this goes, WTF?? Head is spinning, see how what goes??
so we go through the traumatic experience of getting the IV line in which was a mission that involved 7 people, just to hold him down and one to put it in, he starts treatment and we stay at the hospital for the weekend, none knows anything and people are asking me what is wrong with him?? what you people are the Drs here not me, finally comes Monday and we see another Paedatrician, who it the head of Paedatrics, here on the Gold Coast, im thinking great finally somebody who will give me some answers.
Hi Dr just wondering if youve got any other information on this Landau Kleffner Syndrome?? hoping you could help me understand what is happening??
Dr replys in very polite voice, um im not really sure ma'am for all we know (flicks through files) Blake could have Blake Corliss syndrome, my heart just sank to the floor , what?? arent you going to help him, oh yes ma'am well do all we can for him, just the reaction differs from patient to patient and so we just have to treat it as it comes.
FAST FORWARD a few weeks and we get to see the Head of Paediatric Neurology at Brissy hes a lovely Dr who seems very keen to understand this syndrome and has been on several telephone conferences with Drs in Seattle and somewhere in Norway where they seem to be taking kids for USA and Europe to they have conflicting reports and feel blake should go for more tests including and MRI to assess if it is LKS or some other type of problem, (which they havent specified, but ive read the symptoms of this syndrome can also be caused by a brain tumor or lesions on the brain
Yesterday we have been for the test MRI Scan and also on Monday we went for a repeat EEG scan to see if medication is having any affect, hopefully we will have some answers by next week although we dont see the Neurologist again until the 7th
so there has been my last few months, weeks, in a whirlwind of caious and confussion, and we are still no closer to an answer than before, still in limbo waiting for the next lot of tresults to come in and tell us an new story, hopefully this ones better thats all i can pray for right now is a better ending for our little man, no matter how many times you think it cant get any worse it just dose and seems to come and knock you flat on your arse again... im sick of that feeling, flat on my arse, not way out..
til next time with the LOs and opics to share
Posted by Megan W at Thursday, June 19, 2008 12 comments
Friday, March 28, 2008
Neglected...
i guess thats how my blog feels, but after running around after three crazy little people all day i just dont seem to find the time or energy to update it, hopefully this wuill all change and we can get some regular updates, on here, well ill try lol
LO of Heidi, really all ive done all year, um mah isnt that naughty, still been buying stuff though, hopefully ill get to use it soonish..
Posted by Megan W at Friday, March 28, 2008 3 comments
Friday, January 25, 2008
Go Visit Karen...
"Purple Monkey Dishwasher"
http://karen-day.blogspot.com/
Posted by Megan W at Friday, January 25, 2008 0 comments
Happy New Year....
Well sort of just a bit late as per usual, these days, everything seems to be running a little behind the 8 ball and i just hope that as soon as the boys go back to school next week, ill be able to slowing but surely dig my way through my list of things to do and get something achieved.
Well, weve had an exciting holidays and are now the official owners of one regular sized block of land that in the coming months will slowly transform into our new house, cant wait til all the work starts... YAY the "biggest diggers" quote by Jack, will be on the scene and doing their stuff by next weekend.
Over the holidays we went for some photos with the extreemly talented Ali who will have our photos and oh oh this lovely big/hugh canvas, from our pics at the beach just before Heidi was born, cant wait to get these. Told Paul hell have to hurry up and build our house so i can put them up somewhere LOL
Ive also managed to scrap a few LOs this week, hopefully this is another thing ill have more time for when the boys are back at school.The first one ive been stumped on for weeks and am glad i got it done, typical Blake personality, determined to do everything Jack does even if theres a chance he'll kill himself or cause a major injury in the process... boys typical boys.
Posted by Megan W at Friday, January 25, 2008 2 comments
Labels: LOs
Tuesday, December 18, 2007
Oh My She Blogs Again
ITS A GIRL!!!!!!!!!!!!!!!!!
Well im sure most who read this already know its a baby Girl we welcomed into our family on the 1st Novenber 2007 at 2:08 pm weighing in at 6lb and a half an oz
Heidi is doing well and Jack absolutly adores her, Blake well thats another story hes not to keen on the whole baby thing is is taking his sweet time to come around too, LOL thats just Blake for you
Well heres a pic of the new little munchkin ..
Hopefully ill get some time next year to do a few LOs for her, ive only done two so far, will share them next time though
Hope everyone has a safe and Merry Christmas and a Happy New Year
Til next time..
Posted by Megan W at Tuesday, December 18, 2007 3 comments
Wednesday, October 3, 2007
{Thats Life Challenges
Well ive been slowly but surely working through these Thats Life Challenges from Nic Howards new book, they really are something different, everyone seems to be getting into the scrappin real life events instead of beautiful pics of their kids and i say go for it isnt this why we scrap to remember the little things life is all about the details, little things that get forgotten and lost in the husstle and bustle of daily living, i just hope i can keep up with it, so i stay motivated.
I already miss this :O( nap time, i took this pic in February this year and its the last time Jack and Blake have had a nap together, (im sure its the last day nap Jack has had) im lucky to get just Blake down for a little rest now, they just wanna go go go...
37 down 3 to go
Posted by Megan W at Wednesday, October 03, 2007 4 comments
Labels: LOs
Monday, September 24, 2007
{ Just a Layout or Two
Just a quick couple of LOs to share, the first is of my beautiful little men just sleeping where they drop quiet common after a day running around at the beach wearing themselves out. Loved using all these new Jenni Bowlin products i just ordered, they arrived in speedy time and she will ship straight to you from her studio and the prices are really awesome, not too much for postage either, gotta love that CHEAP postage.
THE BIRTHDAY BOY
Posted by Megan W at Monday, September 24, 2007 3 comments